Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?
نویسندگان
چکیده
UNLABELLED BACKGROUND Development of interventions that address psychosocial and existential distress in people with motor neurone disease (MND) or that alleviate caregiver burden in MND family carers have often been suggested in the research literature. Dignity therapy, which was developed to reduce psychosocial and existential distress at the end of life, has been shown to benefit people dying of cancer and their families. These results may not be transferable to people with MND. The objectives of this study are to assess the feasibility, acceptability and potential effectiveness of dignity therapy to enhance the end of life experience for people with motor neurone disease and their family carers. METHODS/DESIGN This is a cross-sectional study utilizing a single treatment group and a pre/post test design. The study population will comprise fifty people diagnosed with MND and their nominated family carers. Primarily quantitative outcomes will be gathered through measures assessed at baseline and at approximately one week after the intervention. Outcomes for participants include hopefulness, spirituality and dignity. Outcomes for family carers include perceived caregiver burden, hopefulness and anxiety/depression. Feedback and satisfaction with the intervention will be gathered through a questionnaire. DISCUSSION This detailed research will explore if dignity therapy has the potential to enhance the end of life experience for people with MND and their family carers, and fill a gap for professionals who are called on to address the spiritual, existential and psychosocial needs of their MND patients and families. TRIAL REGISTRATION ACTRN Trial Number: ACTRN12611000410954.
منابع مشابه
Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease
BACKGROUND Dignity therapy is a brief psychotherapy that has been shown to enhance the end of life experience. Dignity therapy often involves family carers to support patients weakened by illness and family carers are also the usual recipients of the legacy documents created. No research to date has examined the impact of dignity therapy on family carers at the time of the intervention. This st...
متن کاملFeasibility, Acceptability, and Potential Effectiveness of Dignity Therapy for People with Motor Neurone Disease
BACKGROUND Motor neurone disease (MND) practice guidelines suggest developing interventions that will promote hope, meaning, and dignity to alleviate psychological distress, but very little research has been done. This study begins to address this need by exploring the use of dignity therapy with people with MND. Dignity therapy is a brief psychotherapy that promotes hope, meaning and dignity, ...
متن کاملErratum to: Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease.
Acknowledgement The authors thank Samar Aoun and Harvey Max Chochinov for their assistance with the project, for securing the funding for this study, and acknowledge their contribution to the conception and design of the project. We are grateful for the support of the Motor Neurone Disease Association of Western Australia. Finally, we wish to thank all of the people who took part in this study.
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